My boss has been absolutely supportive of my need to go back west, having four to five days off and working two and a half days a week. What she has said is too much; it’s too complex. Schedule of Events. The award-winning news anchor decided to set aside his growing career to care for family. Acceptance: Richard Lui’s Father and Alzheimer’s Disease “When we first learned about my father’s dementia, it was like watching my dad die in front of me. 225 N. Michigan Ave. ", "Look at me, I'm miles away from my family; I can't see my kids. He is being this person that loves life. Your mom is your father’s primary caregiver. It began with a diagnosis of dementia. As a social worker, he was forward with people and told them what they had to be prepared for. New documentary highlights young veteran caregivers of color Sometimes he forgets me and I’ll need to re-introduce myself – ‘It’s me, Richard. How has your profession helped you handle your father’s Alzheimer’s? He will joke and around and say ‘Sorry, my Alzheimer’s makes me forget things.’ He laughs all the time. I’m engaging it head on. [00:07:12] Richard Lui: Oh, this is in terms of Alzheimer's, maybe year one, which means you know a level of 1 or 2, which means that you and I could have a full conversation with him and everything would be fine, right? Alzheimer’s Association Listenline . “When we first learned about my father’s dementia, it was like watching my dad die in front of me. Instead, we created a stairless ranch level apartment in their tall “Full House” type San Francisco home we all grew up in that would help Mom and Dad's long-term living needs. She can’t do it. Tell us about your father Steven’s Alzheimer’s diagnosis and how it came about. Having just learned of his father's Alzheimer's, the journalist wanted to be with him during his important last years, even if it meant setting aside his career. She doesn’t give up. In moments when she’s alone with my Dad and I am in the other room, I can hear the frustration of a person who had been steely, personable, forthright and honest her entire life. “Sky Blossom: Diaries of the Next Greatest Generation” is a new documentary produced by news anchor, caregiver and longtime Alzheimer’s Association Champion Richard Lui. Sometimes, it’s just me being with my mom so that she can speak to an adult normally. He won’t remember things that he cares about. He was always open to whatever had to be done when he was sick and the same is true with his Alzheimer's. He hugs me and kisses me and tells me that he loves me over and over again. As a young man, my father was the one who taught me how to shave my chin. Social isolation poses a challenge to Mrs. Chu, a Chinese American senior living alone in New York City. Coronavirus (COVID-19) Alzheimer's and Dementia, COVID-19 Vaccine: Answers for Dementia Caregivers and People Living with Alzheimer's, Difference Between Alzheimer's & Dementia, Causes and Risk Factors for Alzheimer's Disease, Coronavirus (COVID-19): Tips for Dementia Caregivers, Financial and Legal Planning for Caregivers, The Holidays and Alzheimer’s During COVID-19, The International Research Grant Program (IRGP) Council, Alzheimer’s Strategic Fund: Neuroimmune Program, Part the Cloud-Gates Partnership Grant Program: Bioenergetics and Inflammation, Pilot Awards for Global Brain Health Leaders (Invitation Only), Robert W. Katzman, MD, Clinical Research Training Scholarship, International Brain Study: SARS-CoV-2 Impact on Behavior and Cognition, Alzheimer’s Association Business Consortium (AABC), Global Biomarker Standardization Consortium (GBSC), Global Alzheimer’s Association Interactive Network, International Alzheimer's Disease Research Portfolio, Improving State and Federal Response to Coronavirus (COVID-19) in Long-Term Care Settings. Richard Lui Anchor, MSNBC. “T Now we all just hug each other. New this year! Bottom photo: Richard Verdi, David Hyde Pierce & Richard Lui at the 2016 New York City Walk. © 2021 Alzheimer's Association® | All Rights Reserved | Alzheimer's Association is a not-for-profit 501(c)(3) organization. During these visits, I was able to see moments in time — snapshots of my Dad, if you will — and I began to notice the differences in him. Most recently my father has lost the ability to shave, and I helped shave him for the first time. He has no worries in the world. He laughed and smiled and thanked me as I cleared his whiskers. Richard Lui is a MSNBC news anchor and a caregiver champion who is a caregiver for his father who has Alzheimer’s. He served as emcee for the 2016 New York City W alk to End Alzheimer's. Interestingly, these are not topics we would typically talk about…long-term care, planning ahead…but because my father is so open, we were able to talk about it bluntly. I’m not running away from it. ", Featuring the Migrant Experience, One Story at a Time, Cultural Caregiving for Aging Asian Americans. We are a multigenerational Asian American family, and each of us assimilates differently, just as any American family does in their community, city and social circles. It is … She is a hidden hero. As a caregiver, how do you make this long-distance, long-term travel work with your schedule as an anchor and reporter? This is a caregiving story that presents the challenges and hopes of an Asian American couple and their battle with Alzheimer's Disease. We didn't treat him like a special person. I'm here to help you. I wish I could draw just a little bit of that attitude and energy into my life and do something to the degree they do—it’s amazing. I’ve always traveled back to San Francisco from New York for family gatherings. Home Office So, Richard set out to explore why he struggled. Schedule of Events. [00:07:08] Will Johnson: And Richard, let me ask where he was in terms of Alzheimer's diagnosis? Today Richard is a journalist and news anchor for MSNBC and NBC News and is known for his humanitarian charity work. In a way, he was equipping himself to be the happy embracive person he is today. I listen to and look at the other women (who I call aunts) that my Mom gets support from. Please select an option below: We sat down to talk with Richard Lui, news anchor for NBC and MSNBC and long-distance caregiver for his father, who is living with Alzheimer’s. Richard Lui, Marriage & Family Therapist, Sacramento, CA, 95821, (916) 678-1960, I offer a compassionate, safe place for individuals or couples to get … I want to be the one who shaves him every day – but I can’t. As a journalist, we’re somehow equipped to dive into situations quickly. What moments of joy have you found since your father’s diagnosis? We were close, and we will always be close. Do you feel bad for me? Do we remove them from the house and move them to another facility? Like most of the American families, Lui's family is a multigenerational Asian-American family; his mother was born in China, and his father in San Francisco’s Chinatown. We started some early preparation. Tell us about your father Stephen’s Alzheimer’s diagnosis and how it came about. Eventually, we got used to each other. She also talks to some of her other close church friends who are also caregivers every couple of weeks. All caregivers are. He says he loves me every thirty minutes. There have been many emotional moments. And as a journalist, I learned years back that in order to tell good stories I had to emotionally access parts of who I am that I wouldn’t have had to otherwise if I was not a journalist. It’s especially tough on my mom. About Richard Lui: Richard Lui has had an illustrious career that has included roles in marketing, strategy and technology. About Richard Lui: Richard Lui has had an illustrious career that has included roles in marketing, strategy and technology. Mom talks to one of her good friends whose husband also has Alzheimer’s. This was about five years ago, and it resulted in a diagnosis of early signs of dementia. Now, I don’t say anymore that he’s dying in front of me. Richard Lui: We had a family discussion along the way. Instead of moving because of my childhood home’s dangerous stairs, we decided to remodel their house so my Dad wouldn’t be shocked by a strange living situation which could cause more loss of memory. This dementia, although I wish it didn’t happen, is what we have been given. Accepting helps us enjoy what we do have everyday.”. Twice a year, my father’s side of the family would go to the cemetery and burn fake money and leave food for my grandfather, along with his favorites – whiskey and cigars. I say that he’s being reborn. Many of these adults are immigrants who struggle adjusting to a new environment and the acculturated lifestyle of their children. Caregiving is an extension of that. Dad is one of 13 children in his family, and at Christmas, his youngest sister Fannie pulled me aside and said, “I’m concerned, Steve is forgetting our names.” He agreed he should get tested. The interesting part is my Dad never had a great memory – it was something we joked about. Taking care of my dad is like raising another kid. He cared too much and was often stressed. Have there been difficulties or cultural barriers in finding a support system or talking about the disease? Journalist / News Anchor @MSNBC @NBCNews Director @SkyBlossomFilms Author @HarperCollins @Zondervan Twitter: @RichardLui … That is why, despite having the most demanding travel schedule of my siblings, going back once a week to help my parents is not a big deal. On the flip side, we laugh about the silly things that he says. I’m preparing for the moment when he doesn’t fully remember me anymore. add to calendar 9:30 a.m. ... Download the Walk to End Alzheimer's mobile app to send fundraising messages and track your progress on the go. As of now, Lui's dad, Stephen have been diagnosed with Alzheimer, and he is taking long-distance care of his da… Richard Lui is an attractive man who successfully kept his personal life a secret. RICHARD LUI’S VET-FOCUSED DOCUMENTARY “SKY BLOSSOM” PACKS AN INCREDIBLE WALLOP. “No, no no….if I say it to him, he will listen,” she says with her endless amount of hope. Three months after we started to care for him, my brother hugged him and he hugged my brother back. As Celebrity Champion for the Alzheimer’s Association and AARP, Richard shares stories and the emotions of caregivers, showing how their job is tougher than most. From road trips à la the “Vacation” movies where we piled into the station wagon to see my Mom’s family in L.A., to gathering for Ching Ming, it was never explicitly said “you have to take care of your family” – it was simply understood. He has three siblings. What’s good about my father is that he knows he has dementia. He served as emcee for the 2016 New York City Walk to End Alzheimer's. That is very uncommon for very practical reasons of the way journalism works but NBCUniversal has been nothing short of amazing. This is the person he always was who I’m only now getting to know. We conversed with him. Call our 24 hours, seven days a week helpline at 800.272.3900. This is life. Outside of work, Richard travels each week from New York City to San Francisco to care for his father, an Alzheimer’s patient. He never confirmed about being gay but also never introduced his girlfriend to the outer world. Opening 9 a.m. Watch the Opening and Promise Garden Ceremony on Mainstage. He was a pastor and couldn’t support the family on his salary, so he became a social worker to have a steady income, but that didn’t pay much either and he wasn’t built emotionally for social work’s noble but trying tasks. I feel comfortable asking difficult questions about care facilities, financial planning and other sensitive topics. At Christmas, we would have 90 people together – cousins, aunties and uncles all celebrating the holiday. As a family, we have to answer the tough questions: What’s the right time to bring in full-time care? He was formerly at CNN Worldwide. Richard Luiwas bBorn in 1972, into a low-income family; his father was a youth pastor turned social worker; whereas his mother was a former teacher turned stay-at-home mom. There was a time when I would describe being with him like watching my father die in front of me. So this latest change was symbolic. However, what started to happen was much more extreme. She comes from a golden generation of exceptional values, but I can sometimes see the crack in her armor. Alzheimer's Association is a not-for-profit 501(c)(3) organization. We don’t know if he is dating anyone. When I am at home in San Francisco, I sometimes hear Mom speak to Dad in certain ways and I tell her that he won’t understand. That’s why filmmaker Richard Lui named his documentary about millennial and generation z military caregiving families “Sky Blossom.” “This generation of caregivers is coming to help,” Lui said. New this year! He accepts his diagnosis for what it is. Story by Barrett Newkirk | Photos by Richard Lui. How did growing up with a close family help you face the challenge of being a caregiver? But it was my honor, too. I try to stay with my parents when I come back so I can observe the nuances and changes…how it’s difficult for Dad to brush his teeth or walk down the block to get a haircut. Richard Lui Anchor, MSNBC. When we sat down to talk about changing my work schedule, I found out she was also a long-distance caregiver who traveled to take care of her mother. You’ll meet two caregivers of family members, Kristy Dewberry and newsman Richard Lui, and share in their strength and grace. It was probably more nuanced for my mother, who lives with him, but I saw it, and now make the 5,000-mile round trip to see him once a week most months. We’ve always been a tight-knit extended family. As their friends, loved ones, and healthcare providers, how can we give the kind of care that respects their traditional cultures while meeting their most basic needs? World Alzheimer’s Day (21 September) Some of us have experienced the pain, difficulties and frustration of taking care of our close ones, who suffer from Dementia or Alzheimer’s. I have to accept that this is part of our daily existence. The commitment they’ve all made is exceptional, without a squeak or a squawk. He is a gentle soul, still helping with chores around the house despite his increasing dementia. Every week, Richard travels coast-to-coast to be with his family. How do we talk about this with our mom, so that she is not emotionally impacted in a severe way? “In the inspiring way he has shared his story of being a long-distance caregiver for his father with Alzheimer’s, Richard Lui is exactly the … His memories were being taken away everyday. What has her experience been like, and what have you drawn from her strength? What are the tough moments you’ve faced since your father’s diagnosis? How do we lead her to that place? It’s just how we are. More broadly, Asian American and Pacific Islander (AAPI) families like ours take on responsibility of caregiving without thinking twice – an unwritten and sometimes unspoken practice that family is number one. Life is a stack of pancakes, and Alzheimer’s takes the top pancakes little by little until you’re left with none. By Jeff York. Today Richard is a journalist and news anchor for MSNBC and NBC News and is known for his humanitarian charity work. He then went in for further evaluation and it was determined he was in early signs of Alzheimer’s. You'll find out how you and your family can help find a cure through the Alzheimer’s Prevention Registry, hosted by Banner Alzheimer’s Institute. When his father was diagnosed with Alzheimer's disease, Richard Lui did something tough. Seven years ago, news journalist Richard Lui walked into his supervisor's office at NBC's 30 Rock headquarters, prepared to give up his dream newsanchor job. She has a support system but despite that, I know this road hasn’t been easy for her. Grandfather Bobby Nawai is losing his fight against Alzheimer’s. Finding Joy in the Face of Alzheimer’s: Richard Lui Talks Family & Long-Distance Caregiving, Showing {{currentNumberOfComments}} of {{totalNumberOfComments}} Comments, 225 N. Michigan Ave. No matter who you are, you will either have to give or receive care -- or both. We called several places in the Bay Area to get help. And there’s the silver lining. Richard Lui - Transcript . It wasn’t until about a year and a half after that that he was diagnosed with Alzheimer’s. At CNN Worldwide he became the first Asian American male to anchor a daily, national cable news show when he … View Comments. To highlight and raise awareness of the importance of family caregiving and health care education, Richard serves as an AARP Caregiving Champion and an Alzheimer’s Association Celebrity Champion. And it was saddening. I don’t want to do it, but we need to. Now I see him being born again in front of me. Richard Lui: Cause my father was a pastor, is a pastor and the church that he had gone to as a teenager was in Chinatown as well. He won’t remember things that he cares about. Sometimes, it’s to help with the day-to-day needs of my dad. Like a good journalist would do, she brainstormed options, and six months later our strategy was in place. Your son.’ There will be a point someday when he doesn’t fully remember me. 146 talking about this. Caregiving is something that affects all of us. When it comes to the way we handle my father’s diagnosis, each brings individual strengths. Every week, Richard travels coast-to-coast to be with his family. One decision we made as a family was my Mom and Dad's living situation. Floor 17 Chicago, IL 60601. ... Alzheimer’s gradually affects a person’s brain function and memory. In Enduring Together: Asian Americans and Alzheimer’s Disease, Lui shares his own experiences as caregiver for his father with Alzheimer’s.“The idea was, if you want to be in broadcast news, you need to not be asking to be on TV less,” Lui told AsAmNews.And in order to go home to his family every week to help take care of his father, he had to ask to be on TV less. “It’s symbolic because they are blossoming as people. add to calendar ... Download the Walk to End Alzheimer's mobile app to send fundraising messages and track your progress on the go. I don't because there's a purpose. Today, we take a look at a son’s love for his father and how he has to travel 5000 miles round-trip every week to take care of his father. Home Caregiving Alzheimer's and Dementia Everyday Coping for Caregivers How Richard Lui Makes Long-Distance Caregiving Work How Richard Lui Makes Long-Distance Caregiving Work The television anchor gets candid about his father, Alzheimer's and how he stays connected from afar. Richard Lui is an American journalist and news anchor for MSNBC and NBC News.Lui anchors Early Today on NBC and is a dayside anchor for MSNBC broadcasting from 30 Rockefeller Plaza in Midtown Manhattan, New York City. I try to go back to visit my dad and mom in San Francisco once a week from New York City. And as his memories disappear, he disappears little by little. From a professional standpoint, I am so thankful my supervisor understands the situation I am going through. His memories were being taken away everyday. And sure enough — sometimes he does. I find moments of joy every time I go home! Let us connect you to professionals and support options near you. Caregiving for aging adults among Asian Americans comes with cultural attitudes, beliefs, and practices that can be starkly different from those of the general population. "We treated him like he was one of us. But through this process, my father has shown me another side. Selflessness, however, did not come easily. The practice of consistently going back and forth helps me gather the information I need in a short amount of time. New doc from MSNBC's Richard Lui examines young Americans who care for disabled family members Judy Kurtz 11/10/2020 Rep.-elect Cori Bush reflects on Black Lives Matter roots, why she ran for Congress Tom Riley is the … My Dad is a joyous person, which is much different from his personality before the diagnosis. Richard Lui, MSNBC and NBC News Anchor, New York, NY. Sometimes it’s hard to put on a strong face, but I do what I can to help my Mom, who is Dad’s primary caregiver. Taking a plane is second nature to me; it’s like walking out the front door. Richard is a family caregiver himself, travelling from NY to CA each week. For my own part, I’ve had to accept Dad’s Alzheimer’s diagnosis spiritually and emotionally. But as far as the reports hold true, Lui is single and has no wife. He never talked about his married life. Glynn Washington: Richard Lui is a journalist, a weekend anchor MSNBC and he grew up going down to Chinatown, listened to his dad preach. Your mother was born in China, and your father in San Francisco’s Chinatown. That said, my Dad doesn’t fit the stereotype. Opening 9 a.m. Watch the Opening and Promise Garden Ceremony on Mainstage. Richard Lui: So we are here at an amazing place, the Embassy of Italy, here at Washington DC for this, which is an annual gathering with the BrightFocus Foundation focusing on three major issues, one of which is Alzheimer's, second of which is macular degeneration, third of all which is glaucoma—a lot of different words in there but the focus here is to get big brains … It’s going to be tough. What can we afford – monetarily and emotionally? But interestingly, despite this core family strength, few talk about it, nor share best practices openly. They share their immigrant story and the sacrifices, fears, and hopes in enduring Alzheimer's Disease together. Floor 17 Chicago, IL 60601. The Alzheimer’s Association sat down to talk with Richard Lui, news anchor for NBC and MSNBC and long-distance caregiver for his father, who is living with Alzheimer’s. She’s 82 years old. She knew I had to start thinking about options immediately. He hugs and kisses me.
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